The Boy Who Can’t Stop Hurting Himself | BORN DIFFERENT

The Boy Who Can’t Stop Hurting Himself | BORN DIFFERENT

JAREN WICKLUND: Self-injury ranges from biting
the lip, the tongue, the cheek, biting any part of the body he can get to. JAREN WICKLUND: We have five children and
the youngest of which is Davey and he has got Lesch-Nyhan Syndrome. JAREN WICKLUND: There’s pizza, ham sandwich
and apples. What would you like right now? DAVEY WICKLUND: Ham Sandwich. JAREN WICKLUND: Ham Sandwich? Okay! JAREN WICKLUND: In a nutshell, Lesch-Nyhan
Syndrome is basically cerebral palsy. Davey has got the extreme with self-injury, injury
of self and injury of others. JAREN WICKLUND: It’s very rare. It’s only
in 1 in 380,000 births. They will bite their fingers, bite their toes and if someone is
close by, they will lean over and bite them. Not that he actually goes for them but if
you are close enough, his mind kicks in and says, ‘I need to bite you.’ JAREN WICKLUND: To protect Davey from self-harm,
we have to have more arm braces, keeps his hands from reaching his mouth. We have had
to make special kangaroo pouches for his legs so his feet don’t kick too far. So basically you look at his wheelchair, he has got straps everywhere. JAREN WICKLUND: If he turns around to see
that there is anything hard he will hit his head. Whenever he is near anything dangerous,
it’s all covered. JAREN WICKLUND: So at bedtime, we take him
out of his hard armguard. We put this on him and it goes over like this over his shoulder
and you can see how long it is. He can freely bend his arms but he can’t get to his fingers.
These are other versions I made out of foam, out of string trimmer. So all of these things,
I have to redo because each time I make a new thing, he out, he out manoeuvres it and
finds a way to hurt himself. So, I end up making another kind and another kind and another
kind. DAVID WICKLUND: And if he bites too much on
his lip then we can put this in his mouth. So that he will bite on this rubber instead of on his lip. So he kind of goes in phases with the self-injury. Right now he is not needing
this at all. JAREN WICKLUND: So this is how he lives. JAREN WICKLUND: 1 year, 4 months was when
he started going like this with his lip and it started to bleed more and more. It was
the very first time we had ever seen it happen. DAVID WICKLUND: He had no appetite either
and he kept losing weight. So, we had to get a gastrointestinal tube put in him so that
we could feed him directly into his stomach. DAVID WICKLUND: Someone with this syndrome
is unable to produce a certain kind of protein. Because of that, they can develop stones in
their kidneys. JAREN WICKLUND: You feel like going into your
tummy? DAVEY WICKLUND: Yeah, after. JAREN WICKLUND: After? JAREN WICKLUND: This has kept you alive for
many years. Huh, buddy? DAVEY WICKLUND: I am a baby. JAREN WICKLUND: You are a baby. You couldn’t
eat. Yup. Now, you can start eating. Right? DAVEY WICKLUND: Yeah! Finally, JAREN WICKLUND: Finally. JAREN WICKLUND: My other kids love Davey.
They know he needs help. Sometimes they do resent having to help because they want to
live their own life and do their own thing. I understand. But they love him deeply. STEPHEN WICKLUND: It’s like a cat and mouse
game, where whenever we make a solution he eventually finds a way to still hurt himself.
So it makes you really feel bad. GRACE WICKLUND: Davey has really brought our
family together. It’s sort of a connection. It’s a really strong bond. JAREN WICKLUND: Davey needs 24-hour supervision.
Lesch-Nyhan Syndrome requires the caregiver always be near him. Because we do all the,
all the extra body care. All they have to do is play with Davey and keep him entertained. JAREN WICKLUND: We have gone through, how
many? 5? 6? One has stayed 6 months, another has stayed 4 days, another stayed 2. But the
latest one, Cynthia, she has been a godsend. JAREN WICKLUND: She came to us about 11 months
ago. CYNTHIA HOLLINS-SUMMERVILLE: The most rewarding
thing is seeing him light up. It warms my heart. CYNTHIA HOLLINS-SUMMERVILLE: As far as Davey’s
disability, I haven’t seen anything like it before. JAREN WICKLUND: Davey is 11 years old and
he goes to the elementary school nearby. MAN: Hello! How are you? JAREN WICKLUND: They upgraded the whole classroom so that Davey can enjoy all the activities with the other kids. DARCY RHODES: In my special ed classroom Davey
fits in with everybody. He is just part of the class. Other students don’t always,
can’t always understand him. He’s great at math. He has to talk a teacher through
his math problems. He is really sensitive. He will even notice if I am having a bad day
or if I got frustrated with a student. He will say, ‘Miss Rhodes are you okay?’ JAREN WICKLUND: Average life expectancy, we
are looking at the teens. JAREN WICKLUND: Roughly 19 on to mid 20’s. JAREN WICKLUND: It’s hard but we are actually
able to make a life for him that will give him joy. JAREN WICKLUND: I first thought he might die
at a young age. So I bought a big camera because I wanted the memories in case he did pass away early. JAREN WICKLUND: I would always see pretty
depressing shots of disabled kids. So I decided I wanted to have the world know what it was
like to have a child like Davey. JAREN WICKLUND: Full of joy and disabled. JAREN WICKLUND: He is a cute little guy. JAREN WICKLUND: He is always laughing, smiling,
making jokes, teasing us. JAREN WICKLUND: And he does have his moans
when he has pain. Obviously, he cries. But he doesn’t linger on that very long and
he is, he is, he is joyful. JAREN WICKLUND: He can’t have a typical,
normal life. But the best we can give him is what we are giving him now.

100 Replies to “The Boy Who Can’t Stop Hurting Himself | BORN DIFFERENT”

  1. Its gonna suck when the parents can no longer care for him and its gonna suck even more when the siblings have to figure out whos going to have to take care of him…. Im sorry but its true, you have to think about everything.

  2. Davey and his family are true inspirations. They are so strong and loving. Best wishes to Davey and his family. Love you guys. ❤

  3. I don’t know if I’ve ever seen so many pictures of a child who is struggling so much with a totally genuine smile on their face. That makes me so happy for him that he’s got such an amazing family.

  4. I know how it feels my friend at school has it but not extreme when I try to hug him he pulls my hair and glasses but I still love him

  5. One of my favorite campers at a camp for people with disabilities I used to work at had this. I requested him to be in my cabin because I thought he was such a cool guy.

  6. I have a friend who is special needs he is in a wheel chair and he makes everything better he makes people smile he can literally Melt your heart with happiness he is the sweetest kid in the world like ever. He is very special to me he is very smart and he actually has one are paralyzed for some reason and he can’t talk very well and he can say some things but not all he has to life a one handed life in a wheelchair but he doesn’t care he loves making people happy 😃 and I love that kid❤️

  7. Actually CBD will help this kid from hitting himself. I saw that on video who has the same problem as this guy and his father gave him few drops of CBD and he stopped hitting himself temporarily

  8. very inspirational that gives me a lesson that I need to be thankful that im normal…godblees you and our family <3

  9. I don't want to sound cruel but if we see the situation logically the best option for that boy is the euthanasia.

  10. A girl with the same decease lives in my country but in her case, her father tied her with chains in a garage like an animal.

  11. Damn this sucks I don’t wish this on nobody’s kid not shaming but just like I wouldn’t want my lil bro hurting himself.

  12. I'm not gonna lie but he's soooo handsommeeee😭😭😭 i pray one day there will be a cure for you, boy! And shout out for mom, dad and the whole family who support him all the way! God bless this family💕

  13. He’s incredibly intellectually advanced, I may sound VERY ignorant. Please don’t be offended. I would expect a boy of his disability to be less advanced. He’s so smart!!!!!!! I hope he has a happy long life. When he smiles it absolutely warms my heart!

  14. I know how this mother feels. I'm not a mother, but I am an older sister of an autistic little brother. Before he would be himself. He would laugh a lot and he was learning how to feed himself. After he got to his "pubescent" years, that's when he started hurting himself, how? He would either punch himself so hard in the head, or he would try to hit his chin with his shoulder. It's actually quite sad, especially when you really can't do nothing because you don't know what he's wanting or trying to say (my brother doesn't talk.) My mom has made many gloves and some sort of neck pillows for my lil bro, she even made a few straight jackets for him so he wouldn't reach his head and hit his head. Now he's doing some what better, he still hurting himself but not as often anymore. Y'all probably won't believe me, and I understand why, this is the internet, but I swear on my soul to Lucifer it's true.

  15. Him playing at P.E reminds me of a part in the book “Freak The Mighty” I’m pretty sure you’d know the part if you’ve read the book.

  16. I can imagine she as a mother cried so much for him cause she just wants him to be happy and live his life, everyone can help as much as possible but the question is if it's ever gonna be enough? I really hope she doesn't blame herself for anything. She's doing everything she can.

Leave a Reply

Your email address will not be published. Required fields are marked *