The girl born with heart outside her chest – Incredible Medicine: Dr Weston’s Casebook Preview – BBC

The girl born with heart outside her chest – Incredible Medicine: Dr Weston’s Casebook Preview – BBC


7-year-old Virsaviya loves to pull shapes
on the dance floor. But, Virsaviya was born extraordinary. This is my heart. I’m the only one that has this. Virsaviya was born with a condition called
Pantalogy of Cantrell, that only occurs in just 5 per million. And what it means is that Virsaviya was born
with her heart not inside the ribcage, where it would be protected, but on the outside,
just under the skin. When I’m getting dressed, I put soft clothes
on to not hurt my heart. And I just walk around, I jump, I fly, I run. Well, I’m not supposed to run, but I love
running. When Virsaviya was born in Novorossiysk in
Russia, doctors warned her mother Dari to prepare for the worst. Doctors told me that Virsaviya had really
rare condition, but they said she won’t survive. When I saw first time how her heart is beating,
of course to me it was something- something special. It meant that Virsaviya’s alive and she can
breathe and she can live. Dari moved all the way from Russia to America,
and her hope in doing that was that her daughter would be able to have an operation to put
things back where they should be. But, unfortunately and very disappointingly
for Dari, she was told that Virsaviya just wasn’t strong enough because of problems with
her blood pressure. We came from Russia to United States. Doctors checked her and they said they cannot
help her. I was really upset about that because they
kept telling me that she will die soon. It’s not easy for Virsaviya to live with heart
on outside because it’s really fragile and she has to be careful. Of course she can fall, and it can be really,
really dangerous. She can die from that.

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